EB - the worst disease you have never heard of. Epidermolysi
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Nikkila Mai
EB - the worst disease you have never heard of.
Epidermolysis bullosa or EB is a rare genetic disorder in which the body can't produce the protein it needs to keep the skin cells together. The patient thus gets blisters very easily and any infection would be a nightmare. There is no cure. The blisters have to be broken to prevent their further spread to other parts of the body- this makes hurting the baby the only treatment. Daily wound care, pain management and protective bandaging are the only other options. The article below is about one such case where the parents of the affected child share their ordeal.


www.washingtonpost.com/sf/style/2017/05/30/a-baby-girl-a-baffling-disease-and-the-only-way-to-help-her-is-to-hurt-her/?utm_term=.5125450e8b13
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