Epidermolysis Bullosa patient determined to help others suff
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24-year-old James Dunn suffers from Epidermolysis Bullosa, also known as EB, a rare genetic skin condition which causes his skin to blister and tear "at the slightest of touch". One of the side-effects of James' EB is a terminal type of skin cancer called squamous cell carcinoma. There's no known cure for EB, and it's likely to kill James before he's 30.

To raise the funds for further research into EB, James is helping collecting pictures of celebrities. So far James has collected photos with Alan Carr, Cheryl, Danny DeVito and Spiderman star Tom Holland. Since EB is a very rare condition, very less money goes into its research. James intends to raise awareness amongst people as well as make it a topic of discussion in the parliament. He will also meet MPs as part of the campaign.

As per the estimates by the EB charity DEBRA more than 5,000 people in the UK have the condition. The charity wants to raise £500,000 towards trials for a new drug that it is believed will have a significant impact on the lives of other people living with the condition...

http://www.bbc.co.uk/newsbeat/article/41589450/my-skin-disease-will-kill-me-but-i-want-to-help-the-next-generation
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