Role of parents in fatigue of children with a chronic diseas
As parents majorly impact their child’s well-being, and as fatigue is a highly prevalent threat to the well-being of children with a chronic disease, we aimed to explore the association between parental factors and fatigue in children with a chronic disease.

Paediatric fatigue was measured using the PedsQL Multidimensional Fatigue Scale. Parental factors included parental pain, fatigue, and physical symptoms, parental distress, catastrophising thoughts about their child’s pain, and family empowerment. Multiple linear regressions were used to study associations with pediatric fatigue. A multivariable regression model was used to assess the effect of the different parental factors on pediatric fatigue. All analyses were adjusted for the age and sex of the child.

204 families participated. More parental pain, fatigue, and physical symptoms, and more parental distress and pain catastrophising were associated with more pediatric fatigue. More parental empowerment was associated with less pediatric fatigue on both subscales. In the multivariable model, only pediatric age remained significantly associated with fatigue. In a separate multivariable model for children 8–18 years old, more parental distress was also significantly associated with more pediatric fatigue.

In a population of children with a chronic disease, parental factors, both physical and psychosocial, were associated with pediatric fatigue. This study provides evidence that more family empowerment is associated with less pediatric fatigue. This exploratory study adds to our knowledge of associated factors with fatigue in pediatric chronic disease, providing starting points for targeted interventions.

What does this study add?

-Study provides new evidence that several parental factors, both physical and psychosocial, are associated with pediatric fatigue in children with chronic disease.

-More family empowerment is associated with less pediatric fatigue.

-This exploratory study adds to our knowledge of associated factors with fatigue in pediatric chronic disease, providing starting points for targeted interventions.

Source:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8144042/
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