Susac Syndrome: Pooling Efforts at the Global Level Against
First described by Dr. John Susac in 1979, SuS is considered a rare syndrome but is likely considerably more common than reported. To date, 313 cases have been reported in the worldwide medical literature, but the prevalence of SuS is believed to be higher. Prevalence estimates are likely confounded by the fact that it is commonly misdiagnosed — usually as atypical multiple sclerosis, atypical acute disseminated encephalomyelitis (ADEM) or central nervous system vasculitis....

https://consultqd.clevelandclinic.org/2016/03/susac-syndrome-pooling-efforts-at-the-global-level-against-a-newly-recognized-disease/?
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